Stephanie Johnson was 38 when she was diagnosed with stage 3 triple negative breast cancer in September 2011. When I asked Scherri how she felt getting the results of her pathology after surgery, she said: "I wasn't too worried since I knew I was going to do radiation. ". ORDER GUIDES. Cancer wasn't even on my radar. I have a 7 year old and am scared that I won’t be here to see him grow . The last year I have been through the ringer. And I share those same feelings of dread about chemotherapy affecting our fertility. "I wasn't aware if I was tested or not. What was supposed to be a happy time in my life became a nightmare. Unfortunately, her results came back and she was diagnosed with Stage 2 TNBC. My journey with breast cancer started when I felt a huge lump on my breast when I was showering one night. Luckily the bone scan showed nothing and I was still NED. "I do believe every survivor gets scared about this. Write down the things you want or need to do. Any long term tnbc survivors … Marilyn Buchheit is approaching her 9th year as a TNBC survivor. To create Linda, we talked with subject matter experts – cancer survivors like Delphyne Taylor and renowned cancer experts – to inform Linda’s experience and information sharing. I know that true health can give us the freedom that we desire in our lives. And don't be afraid to ask for help if you need it including seeking out mental health or spiritual counselling.". See more ideas about spotlight stories, survivor, breast cancer. Don't be intimidated by your doctor, feel silly, or awkward. She also had 35 radiation treatments on the recommendation of her doctors. She felt the tumour shrinking right away and by the end of chemo, she couldn't feel the lump at all. I'm glad to say there was a happy ending - I was able to conceive naturally five years after my treatment had finished and it only took one month of trying. I was diagnosed with triple negative breast cancer in November 2013. Deciding on Breast Reconstruction? All different kinds of BC, but all BC. One good web site to look into is "Positives about Negative". After skin cancer, the American Cancer Society (ACS) notes, breast cancer is the most common cancer among women in the United States. I wasn't going to survive breast cancer and be diagnosed with some other disease at a later stage. Finally, after a couple of weeks someone chimed in and mentioned there was a 15 year TNBC survivor - but she wasn't active in the forum anymore. © Copyright 2021 Patient Resource LLC. Generally, yes, the survivor rate for TNBC is lower than for a similar BC that has positive hormone receptors. She opted for a lumpectomy, however it turned out the surgeon didn't get clear margins and the pathology showed 2 out of the 4 nodes were positive for cancer. Also, manage your own expectations - it's ok to order pizza or dinner out, it's ok for the kids to watch TV if you're tired, it's ok to let the housework go until you have more energy. ", "I got through the tough times by laughter... lots of laughter. It's what ultimately make us human. She had a double mastectomy despite testing negative for any BRCA1 or BRCA2 mutations. Every year that goes by, my thoughts about a recurrence does diminish, but when you get a pain somewhere, the thought of cancer is in the forefront of my mind.". Time moved on, and all my friends’ lives were progressing as normal: having children, changing jobs, getting promotions, and yet time seemed to stand still for me. She loves going to see live music, theatre and playing Texas Hold Em Poker. Be specific about asking what you need as often there are people who want to help but don't know what's needed. Even though I'm a scientist by training, I didn't want statistics. "Live life to the fullest and make memories. It's not easy getting through cancer treatment, and it's even more challenging when you have little ones to take care of. I didn't have kids when I was diagnosed. Even though Jade was diagnosed with TNBC as a young woman she was never offered genetic testing by her doctors prior or during her treatment. You see, I tested positive for BRCA1+ despite being of Asian heritage and having no family history of breast cancer. Find support, and if there isn't one you're not alone - try online support groups. As a mum, our biggest fear is to leave our kids without a mother. Marilyn Buchheit is approaching her 9th year as a TNBC survivor. She was also diagnosed with osteoporosis a year ago due to early-onset menopause caused by the chemotherapy. Remember, we got through this and you will too!". They've also kindly and selflessly shared their words of wisdom along with their pathology, treatment regimes and outcome. She was diagnosed with triple negative breast cancer in 2010 at the age of 29. I needed a more human kind of proof. Finding the Positives in the BRCA-1 Mutation. You see, when I got that diagnosis I knew it was serious. I ride horses, hike, and I kayak when the weather is warm.". It doesn't have to be much just do something for YOU! Today, I want to share my story and five other stories from women who are long term triple negative breast cancer survivors. Initially her doctor thought it was a blocked milk duct, but since it didn't aspirate easily, her doctor sent a sample to be biopsied. Triple-Negative Breast Cancer (TNBC) Breast Cancer Survivors: Estrogen OK'd For This. Fluid had built up in my tissues and lungs and I wasn't able to breathe properly. Anne Goodman was blindsided when she was diagnosed with triple negative breast cancer at just 30 years old. The survivors featured here are people who have agreed to be interviewed by Patient Resource. Triple Negative Breast Cancer Featured Survivors. That second opinion saved me from having multiple surgeries. It is usually treated with a combination of chemotherapy, surgery and/or radiation . "Try to remain calm. All rights reserved. Getting a second opinion doesn't mean that you need to switch doctors. She was 65 when she was diagnosed with Stage 3 TNBC in 2009. Triple Negative Breast Cancer Survivor, diagnosed August 2009, age 41. The two failed attempts was due to the cancer growing so quickly so her doctors decided on chemotherapy right away. Her breast tissue was clear. eNewsletter Sign Up Only the most beautiful, accomplished, desirable and spectacular women get breast cancer? Your diagnosis doesn't mean the worst so take time to digest what you're told. I went to the doctor and the next day my general practitioner felt the lump and told me not to panic as it was probably just a benign lump and lots of young women had it. The moms of actress Emma Stone and model Naomi Campbell are TNBC survivors. Having a diagnosis of breast cancer woke me up to the fact that I needed to invest more time and resources into my health. The survivors featured here are people who have agreed to be interviewed by Patient Resource. I was also given a choice to have radiation and decided to go for it. The emotions I felt during those first few weeks were the darkest I've ever felt in my life. After the initial shock of finding out I had breast cancer, I brought up genetic testing with my own oncologist. Read their stories here. Her medical team went in for another round of surgery, but the second attempt to get clear margins also failed. Breast Cancer Facts & Figures 2019-2020 3 Luminal A (HR+/HER2-): This is the most common type of breast cancer (Figure 1) and tends to be slower-growing and less aggressive than other subtypes. As a Triple Negative Breast Cancer Survivor, This Gave Me Hope One out of every 30 Canadian women who died last year lost her life to breast cancer. She had a lumpectomy and lymph node dissection which confirmed a complete pathological  response. "Living life is essential - spend time with supportive friends and family, engage in the activities you enjoy and do something you've always wanted to do. Your job is not just to be a good patient and follow "doctor's orders". Joan Lunden. "I have days that I feel 20 years older - low energy, arthritis but I try not to give in to it. After 10 years, overall survival rates were: 84% for women with lymph node pCR 57% for women without lymph node pCR; Recurrence-free survival rates were: With many TNBC patients being young women with young families, it's even more painful when you think you could be missing out on seeing your kids grow up. Millvina Dean- Last survivor of the Titanic disaster. Advertise & Update Listings Linda provides reassurance since she shares her own survivor story. All rights reserved. Think of your medical team as your trusted advisors. "Celebrate even the smallest of milestones like when you're halfway through chemo or a quarter of your radiation treatments. But ultimately if your gut says that something isn't right with the advice, to speak up and be heard. I knew that I wanted to share the same inspiration with women who are newly diagnosed and those who are afraid. Scherri had a previous history of cysts so her doctor wasn't too worried about the lump, until it grew to the size of a golf ball. It is really hard to connect with any other survivors because most of them have have no idea what triple negative breast cancer is. I an a TNBC survivor who had a double-mass because of 4 sister survivors already! Dec 3, 2012 - For more survivor spotlight stories, visit www.tnbcfoundation.org. Triple-negative breast cancer (TNBC) accounts for about 10-15% of all breast cancers. During the last half of the trip my ribs started hurting badly. Do what you need to take care of yourself.". “Early detection is so crucial, I consider myself fortunate that I found this in … On carbo gem and keytruda and will have scans after the 6th cycle. Lots of up to date info from a 5 plus year TNBC survivor with many survivor stories. In 2010, I created a blog website called, Triple Negative Breast Cancer, I Won’t Back Down! Ask all the questions you need. For her treatment, Scherri underwent neoadjuvant chemotherapy which consisted of 4 rounds of AC and 4 rounds of Docetaxel. I guess I just had faith that I was in good hands and would be okay.". Learn more.. Trifina Sofian is a participant in the Amazon Services LLC Associates Program, an affiliate advertising program designed to provide a means for us to earn fees by linking to Amazon.com and affiliated sites. Some of the women have just passed their 5 year mark, whilst others are approaching their 10th year as a survivor. I'm going to Cancun Mexico on a spur of the moment trip with my daughters. Her surgeon tried to drain the cyst, and when that was unsuccessful, they sent some samples to be tested. Triple-negative breast cancer gets its name from the absence of the ER, PR and HER2 breast cancer markers. "Take the time to cry and feel sorry for yourself. Since day 1 of my diagnosis, I've made a deeper commitment to my health. Triple negative breast cancer wasn't even known in 1999. The outcome of my genetic testing resulted in my surgical recommendation changing from a lumpectomy + radiation, to mastectomy + radiation. She had a lumpectomy followed by chemotherapy which consisted of AC followed by dose-dense Docetaxel and radiation. I mean who at 29 think they're about to get diagnosed with cancer? The term triple-negative breast cancer refers to the fact that the cancer cells don’t have estrogen or progesterone receptors and also don’t make too much of the protein called HER2. She was having difficulty breastfeeding her baby when she noticed a lump. After chemo (FEC + Docetaxel) Jade underwent a single mastectomy and radiotherapy. What I often hear people say, is that you have to completely trust your medical team. It's a huge struggle getting through breast cancer treatment, and for many women that challenge extends beyond the physical. Grade 3 stage 2b. She had adjuvant chemotherapy involving  Doxorubicin, Cyclophosphamide (AC) and Paclitaxel (Taxol). Famous Survivors Have you noticed? Bonita Holliday-Guy was just kicking back watching TV one hot August night three years ago when she felt a small lump high up on her breast. So we didn't mess around after the first two sisters. I was fortunate to have a round of of IVF before chemo but I had a rare complication called ovarian hyperstimulation syndrome and was hospitalised because my kidneys had shut down. Ann Silberman is here for anyone who needs to talk … I was diagnosed with TNBC in September 2010 with a 2cm lump shown on mammogram and scans showed an enlarged lymph node in my armpit. Triple-Negative Breast Cancer. Because I know that the stronger I am, the stronger they will be. She was diagnosed with TNBC a few days later. So the important point to remember is to:: Ensure you have all the information you need to make a decision, Be thorough and ensure nothing is amiss from the point of diagnosis, treatment and follow up. I was diagnosed with stage 2 tnbc in mar 2017. The sheer amount of mental hurdles that we face can drag us down at any stage of the journey. Linda focuses on sensitive topics like losing hair, family relationships, and survivorship. "My daughter was 11 years old when I was diagnosed and I thought I'd never get to see the day of her wedding. Her tumour measured 2.8cm and was positioned up high on her breast. My lump had noticeably shrunk after the first round of chemo and by the 6th round, I couldn't feel anything. Every year that goes by, my thoughts about a recurrence does diminish, but when you get a pain somewhere, the thought of cancer is in the forefront of my mind." You need to be a proactive patient. I can totally relate to Jade's missed genetic testing during her diagnosis. Our next survivor is Tammy Willmore and her story inspires us to keep fighting on so we can see our kid's achieve great things and experience their major milestones in life. There were no cancer cells left. It's handled by a multidisciplinary team - consisting of many physicians, technicians and nurses, each responsible for their field of specialty. Each and every one of us. `` here to see him grow need as often there are people have. 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